My Story!

Hemolife, hemophilia, LGBTQ, Story -

My Story!

Hey everyone! Like I said last night, I was going to post my story for everyone to read. So, here goes it. Lol

 

I was born in September 2, 1994 in Villa Rica, Georgia. My mom pretty much knew I was going to be diagnosed with Hemophilia when she got pregnant. I have moderate Hemophilia A. My childhood was pretty much like every other hemophiliacs. Numerous trips to the emergency room for injuries. I was lucky enough to grow up with a younger brother who has Hemophilia as well, except he is severe. I was the over protective older brother. I still am. I want to make sure my little brother doesn’t get hurt, although sometimes I wanna beat some sense into him. He’s a really smart young guy and I’m really proud of the young man he is becoming. 

 

Growing up for us was tough because we had to be careful, but I’m glad I had someone that was going through the same thing as me. We related to each other a lot because we had the same problems. Ours being our ankles. He had his first ankle surgery in 2005 I believe. Then he had his second surgery in that same ankle in 2011. I had my first ankle surgery in 2015 and it wasn’t as successful as I hoped it would be. I ended up having to have my ankle fused in March of this year. The surgery was successful. The recovery has been a little difficult and I still have a long road of recovery ahead of me.

 

The way the LGBTQ community plays into this is because I am a Gay Hemophiliac. A once very taboo thing to be. I’m proud of who I am. It took me a long time to be comfortable with my sexuality. I’ve struggled with it for years. I think I’ve known since I was 12. I tried to change who I was because I was ashamed of it. I didn’t want to be gay. I seen how gays were treated and I didn’t want to end up like that. I hid it. I thought I hid it well, but when I came out, a lot of people told me that they had already knew. My mom told me she knew before I did and that she had already accepted it. She was just waiting on me to tell her. I didn’t have a bad experience when I came out. I know a lot of people don’t agree with my life, and I’m totally fine with that. I’m not going to force anyone to agree with it. I’m proud of who I am and that’s all that matters. 

 

My mom is my superhero. I know that’s very cliche to say, but it’s the gods honest truth. She has been there for me through every aspect of my life. She’s been there to hold my hand through every doctors appointment when I was little. She was there for every injury to make sure I was getting my factor. She was there for every surgery and hospital stay. She’s always made sure that me and my brother have been taken care of. I grew up without a father. And my mom has done the best job that I could’ve asked for by being both mom and dad. I couldn’t have asked God to make a better human being. She’s the sweetest, most caring, loving woman on earth. She just doesn’t know how thankful I am for her. She loves me and my brother both unconditionally. I really hope that I make her proud. That’s my lifelong goal. To make my mother the most proudest mom on earth. 

 

I’m very thankful for the Hemophilia community that I’ve encountered. It’s the most open and warm and caring group of people. I’m so thankful for the Hemolife team. Every single one of you are important to me and so many other hemophiliacs out there. You all lead by example and are the best group of role models anyone could have. I’m proud to be a part of this great organization!

 

That’s my story. It’s probably not conveyed in the best way because this was my first time telling my story that in depth. If anyone has any questions or anything they would like to discuss, just email me. If there’s someone out there struggling with anything and they need someone to talk to or need advise, I’m all ears and it will stay confidential between us. 

 

Thank you all for taking the time out of your day to read a little bit about me. I hope that my story and my journey helps someone out there!